A Change Of Plans

As we recently revealed, CJ has a special needs grandbaby, affectionately known as “Noodle.” His mama, Holly, called him that very early on…because he seemed a bit awkward and floppy due to being unable to hold his head up. This was long before we were aware he had Cerebral Palsy, (CP for short) or the serious epilepsy of Lennox-Gastaut Syndrome (LGS).

Anyway, as some of you are aware by reading http://wp.me/p3m3ZG-1vj, CJ’s post dedicated to Holly for Mother’s Day, CJ struggled very much with the diagnosis and prognosis given for Noodle. It was shortly after we were given this devastating news that Holly was able to find a profound essay explaining the sort of disappointment we were experiencing.

We found a beautiful YouTube clip of the essay to share with you. We hope it touches you like it did us. We also hope that it helps enlighten you, too, to the similar plights and feelings of others you may know who have a special needs child…because it is a tough adjustment to make mentally, emotionally, and in every other way life will be affected, from the start.

When a baby is coming, there are so many wonderful plans, hopes, and dreams for him or her. The story in the clip tries to convey what goes on when one is forced to accept that those wonderful plans will never play out the way one had hoped.  The essay was written by a mother of a Down’s Syndrome baby. She wrote in a way that helped us to accept what is.

It helped CJ to see it at the time, although it still doesn’t take away the sadness of the disappointment she continues to feel for little Noodle. CJ admires her daughter Holly’s strength and ability to reach acceptance and handle this load remarkably well…especially since CJ herself doubts how she would have been able to, given the situation.

CJ just feels immensely grateful that Noodle (Nate) is here to love and cherish, for he has in his own way taught her much about love and acceptance of the bad with the good in life. Thank you, Noodle. Happiest 3rd Birthday, Sweetheart!

©2014, C.S. Thompson.



“Noodle” on his 3rd Birthday



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10 Responses to “A Change Of Plans”

  1. Anne Bonney Says:

    Beautiful video. Best wishes to all.

    Liked by 1 person

  2. I’m sorry both. For once I’m beyond speech.
    Love and Massive Hugs

    Liked by 1 person

  3. Great post. I grew up with a cousin who had CP…his parents never dealt with it very well. I hope your experience is diffent.

    Liked by 1 person

    • Thanks Ray. The CP is actually probably easier to deal with. Our little guy’s biggest health concern and threat is the incurable, serious LGS, which torments with ever-evolving (and sometimes worsening) seizures of several types. God-willing, he will be well enough to receive a Vagus Nerve Stimulator implant to help quell the severity and frequency of these seizures.


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